I felt that it was very important to provide information about The Alliance. Although so many things about cavernomas are unknown, The Alliance has the most up-to-date and credible information about them. They have so many resources, active case studies, physician referrals and most importantly, drive to find a cure so that generations ahead will not have to suffer. I wish I had known about The Alliance when my cavernoma was first detected. By sharing their mission, my goal is to help those seeking information benefit from the resources provided by The Alliance.

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“It is our mission to inform, support and mobilize those affected by cavernous angioma and drive research  for better treatments and a cure. We do this by developing and executing strategic, creative, high-return interventions as a model for rare diseases.”

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